Lived Experience Forum

[greenpea]

@The-red-centaur backx

[Tortoiseshell]

Hey @The-red-centaur,  

I don't feel like I have all the information but I can hear there is a lot of anxiety and difficult physical reactions around food right now. That must be so tough. I can hear you're aware of needing to keep your body going and getting some fuel too. We're sitting with you through this. 

Take care,

Tortoiseshell 

[The-red-centaur]

@Tortoiseshell @greenpea I can't deal with eating anymore. I don't care if I the NG tube me anymore. Dinner is in 5 min and I just want to cry.



I'm in so much pain rn. Dr wouldn't increase the pain meds or out them back to where they were. And physio was so hard today. It really didn't help.

[greenpea]

@The-red-centaur Hey The-red-centaur did you end up eating a little bit of your dinner? Just even a few mouthfulls would be a good start.

[The-red-centaur]

I ate half an egg @greenpea



I really don't feel well .... everything getting blurry.

[greenpea]

@The-red-centaur  call the nurse sweetheart. That is what they are for.

[The-red-centaur]

@greenpea I cant. I want to fade away finally.

[greenpea]

@The-red-centaur  You didnt answer my question re food that you do like. Do you like pizzas for example? My kidults just like the garlic bread not the pizzas so now I buy heaps of garlic bread from doninos. Maybe you could orrder some of your favourite food into hospital?

[The-red-centaur]

@greenpea food is evil. J don't like any of it. It's just number. I never taste anything anymore. I'm sorry.

[greenpea]

@The-red-centaur  dont apologise. I still think the nurses and doctors should know how you are feeling. I think you need a private room again and stronger meds imho. Surely they can see this?